Thalassemia is a blood condition that is inherited in which the body
makes an abnormal form of hemoglobin. This leads to the destruction of
the red blood cells and causes anemia. Thalassemia is caused when there
is a defect in the gene that controls the production of either of the
two proteins that form hemoglobin. Sadly this disease is rampant in
countries populated by Africans and Asians. It is this knowledge that
made Thalassemia a subject of major concern to the Relief India Trust Wiki.
Children born with Thalassemia are normal at birth but develop anemia
during the first year of growth. Other symptoms include; bone
deformities in the face, fatigue, growth failure, shortness of breath
and yellow skin. This renders the children unable to lead normal lives.
This also makes it an area of concern for Relief India trust who are
focused on the plight of children and fighting disability. The
organization carries out physical examination for children to establish
if they are victims. Mutational analysis is also carried out to the
patients. The patients are then referred to esteemed medical facilities
for medication and where possible Relief India Trust Wiki may handle the
cases.
Treatment of Thalassemia mainly involves regular blood transfusion.
The good news is that Relief India Trust Wiki is actively involved in blood
donation exercises which make the much needed blood available for this
project. Another mode of treatment is the use of iron supplements. These
supplements are also supplied to schools and hospitals by the Relief
India Trust Wiki. It is recommended that those having blood transfusions
should not take the supplements as they can build up in the body and
thus cause poisoning. The patients receiving therapy receive a treatment
called chelating therapy that helps remove excess iron from the blood.
Severe Thalassemia causes early deaths at an average of 20 to 30 years.
Getting regular blood transfusion and therapy to remove excess iron from
the body helps to improve the outcome. The organization ensures that
therapists are available to carry out this all important exercise.
Untreated Thalassemia may cause heart failure and liver symptoms and
make a person more likely to develop infections.
On the prevention front, Relief India Trust Noida actively carries out
genetic counseling to couples while offering possible alternatives and
solutions; prenatal screening is also done for pregnant women in a bid
to curb the disease in its formative stages. Proper measures can be put
into place to avoid child loss during birth as this disease causes still
births.
Relief India Trust Noida organ donation awareness campaign has a role to
play in Thalassemia treatment. Bone marrow transplants are also helpful
in the treatment of this disease and potential donors are found during
these organ donation campaigns.
Through therapeutic intervention, blood transfusion, early diagnosis
and treatment individuals have been given a chance to lead a normal life
and become more productive citizens. Iron supplements continue to be
rolled out strategically to reach those who need them but cannot afford
them. All this calls for manpower, expertise and financial intervention.
It is therefore an appeal by Relief India Trust Wiki to willing donors and
volunteers to come out in support of this noble cause.
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